My Transmission is Shot
When Your Transmission Goes Out: What Car Trouble Taught Me About Living with a Brain Injury
We had a vehicle with a transmission starting to fail. The vehicle would act strange. The engine was revving, but the power wasn’t reaching the wheels the way it should. Shifting felt delayed and clunky. We made it home, but the warning lights came on, and we knew something was seriously wrong with the transmission.
After a painful diagnostic visit, the mechanic confirmed it: transmission is failing. Not a cheap or simple fix. The part that transfers power from the engine to the drivetrain was damaged, and without it, the vehicle couldn’t do what it was built for—even though the engine itself was still running strong. Sound familiar?
That moment hit me hard because it mirrored exactly what happened to my brain three years ago after my traumatic brain injury (TBI).
I’m Angry, But Why?
I’m Angry… But I Don’t Even Know What I’m Angry At
Some days after my TBI, I wake up with this heavy, restless anger simmering inside me.
There’s no clear target. No single person or event I can point to and say, “This. This is why I’m mad.” It’s just… there. A vague, foggy frustration that makes me irritable, short-tempered, and sometimes even angry at myself for feeling angry.
This is one of the strangest and most exhausting parts of brain injury recovery.
The Spoon Struggle
Why Spoon Theory Is Helpful… But So Hard to Grasp and Even Harder to Accept
If you live with a chronic illness, TBI, or post-concussion syndrome, you’ve probably heard of Spoon Theory.
It was created by Christine Miserandino in 2003 to explain what it’s like to live with invisible illness. The idea is simple: you start each day with a limited number of “spoons” (units of energy). Every single task — getting out of bed, showering, making breakfast, answering a message, working, driving, even having a conversation — costs spoons. Once they’re gone, they’re gone. You can’t just borrow more.
On paper, it’s brilliant. In real life, it can feel both incredibly validating and yet deeply uncomfortable.
Rebooting Your Brain
The Computer Crash Analogy: Rebooting Your Brain After TBI
Your brain used to run like a lightning-fast, high-end laptop.
Tabs flew open without hesitation. Multitasking felt effortless. Memories loaded instantly. Thoughts moved quickly and clearly. You could juggle work, conversations, plans, and emotions all at once without breaking a sweat.
Then the TBI hit — like a massive power surge during a violent storm.
Suddenly everything changed.
Programs started lagging. The screen froze with thick brain fog. Saved files (your memories) became corrupt or hard to find, impossible to save new ones on demand. Simple tasks that once took seconds now crashed the entire system, leaving you exhausted and staring blankly at the wall, wondering why your own mind felt like a stranger.
Repair Over Exile
Why Cutting Out a Sibling Is Almost Always the Wrong Choice
There’s a quiet epidemic happening in many families today: siblings cutting off siblings, family cutting off family. What often starts as “I just need some space” can slowly harden into permanent estrangement. While the person asking for distance may believe they’re protecting their peace, the reality is far more painful — for both sides.
Beauty in the Broken Days
Some people come into your life (even after they’ve left it) and quietly rearrange how you see everything. For me, one of those people is Claire Wineland.
Claire lived with cystic fibrosis—a serious, progressive lung and digestive disease—from birth. She spent huge chunks of her short life in hospitals, hooked up to machines, fighting infections, and facing the very real possibility that each day might be one of her last. She died at 21 in 2018, just days after a double lung transplant. Yet she left behind a voice that still echoes powerfully: sick people are not broken. They are not to be pitied. And their lives can be incredibly full, meaningful, and even beautiful—because of the pain, not in spite of it.
Pounding Headache, Fading Words
I sat down today with the best of intentions. Laptop open, a glass of lemonade, notes scattered across the table like I actually had a plan. The goal? Write a blog post about life with traumatic brain injury (TBI) recovery. Something honest, maybe a little hopeful, definitely real.
Instead, I got... this.
About fifteen minutes in, the familiar pressure started building behind my eyes. Not the dramatic Hollywood migraine with flashing lights and vomiting—just a slow, stubborn fog that turns simple thoughts into tangled knots. I’d type a sentence, then stare at it wondering if it even made sense. Delete. Rewrite. Delete again. The words that felt clear in my head came out jumbled on the screen, like someone had rearranged the letters while I wasn’t looking.
This is TBI recovery in a nutshell for me right now: the intention is there, the effort is there, but the brain hardware is still rebooting. And when a headache joins the party, even basic thoughts get confusing.
Estrangement Meets Mercy
Divine Mercy Sunday: Finding Forgiveness and Healing in Family Estrangement – Lessons from St. Faustina’s Diary
Every year, the Sunday after Easter brings us Divine Mercy Sunday—a feast day given to the Church through the visions and writings of St. Maria Faustina Kowalska. It’s not just another holy day on the calendar. It’s a profound invitation from Jesus Himself to plunge into the depths of God’s Mercy, especially when life feels shattered by pain, rejection, or loss. For me, this feast hits especially close to home because of a wound that still aches: my sisters cutting me out of their lives after my brain injury, right in the middle of their teenage rebellion.
A Dark Room
Finding Light in the Dark Room: What the Documentary “A Dark Room” Revealed About My Own TBI Recovery
Three years after my traumatic brain injury, I watched the 2016 documentary A Dark Room and felt like someone had finally filmed the inside of my head.
The film follows Max Taylor, a promising young hockey player whose NHL dreams ended when he suffered concussions back-to-back. Afterward, Max spent months literally locked away in a dark room—curtains drawn, lights off, noise intolerable, head pounding, emotions spiraling. He felt isolated, angry at the system that failed him yet still in love with the sport that in some ways made him who he was, and at times was suicidal. The documentary doesn’t sugar-coat it: the “dark room” wasn’t just a recovery recommendation—it became a prison of sensory overload, identity loss, and slow, uncertain healing. Through interviews with other players, doctors, and families, the film exposes hockey’s tough-it-out culture while showing the very real, very human cost of repeated concussions.
Where’s Tommy?
I just finished reading Where's Tommy?: A mother’s journey through her son’s traumatic brain injury by Debbie Lennon – It was a heart-wrenching look at the invisible hell of undiagnosed TBI.
If you've ever wondered why someone’s life can spiral so dramatically after what seems like a “minor” accident, Debbie Lennon’s new memoir Where’s Tommy?: A Mother’s Journey Through Her Son’s Traumatic Brain Injury is required reading.
At 16, Tommy Lennon suffered a surfing accident — a surfboard to the forehead that left him with stitches and what everyone assumed was just a bump on the head. No dramatic coma. No obvious red flags at the ER. Life went on. But there was nothing “minor” about it.
Silent Birthdays
The Ache of Loving a Sister You Can’t Reach
Today is her birthday again.
I know the exact date without looking at a calendar. Some things just etch themselves into you. I wake up, go to pray for her, and there it is—another year where the words “Happy Birthday” sit heavy in my chest like stones I’m not allowed to throw. I type them out in my notes app sometimes. Delete them. Type them again. Then close the app and go make lemonade, because reaching out isn’t an option anymore and all I have left are these lemons. She asked me to leave her alone. And I’m trying—God, I’m trying—to respect that.
It wasn’t always this way. I used to communicate with her every day and she would communicate back with me each day. For years we were close as a brother and sister. We used to see each other often. Enjoy doing fun activities. I’d wish her not only happy birthday but wish her happy feast days, baptismal days, confirmation anniversary days - days she didn’t even know were happening that day until I’d wish it to her. It didn’t used to be silent.
But then came the end of her high school years and the first stretch of college.
Newborn Tears
Lately, as my recovery inches along, I've noticed that although I often feel like a toddler, the toddler feelings at times feel... even earlier. Some days, it's less like being a feisty two-year-old and more like being a newborn all over again. That raw, brand-new-to-the-world stage where everything is basic, overwhelming, and completely dependent on the gentle people around you. It's humbling. It's exhausting. And weirdly, it's also kind of beautiful when I let myself see it that way.
Those Wide-Eyed, Wondering Stares
Newborns stare at faces, lights, shadows—with those huge, unblinking eyes—like they're downloading the entire universe one pixel at a time. No judgment, no rush, just pure taking-it-in.
Some recovery moments feel like that too. I'll catch myself staring at a wall, a window, my own hand, because my brain is slowly, slowly making sense of the world again. It's not blankness—it's deep processing. Curiosity mixed with caution. "What is this place? What am I in? What is going on?"
I try not to fight it. I let myself stare, let the brain do its newborn work of mapping reality one tiny piece at a time. Those staring sessions often lead to small breakthroughs later.
I Don’t Need a Nap!
Hey friends,
I’ve been thinking more about this whole “recovery feels like being a toddler” thing, and there’s one part that keeps hitting me harder lately: emotions. Toddlers don’t just have feelings—they have huge, unstoppable, all-over-the-body feelings that come with zero filter and very few words to match. And honestly? That’s exactly where my brain is right now too.
Those Giant, Wordless Emotions
One minute everything’s okay, and the next a wave crashes in—frustration, sadness, being overwhelmed, or even sudden joy—and it’s so intense I can barely breathe through it. My chest tightens, my face gets hot, tears might show up uninvited, or I just feel like I need to move or hide or yell but nothing comes out right. It’s like my brain is back in toddler mode: the emotion center is fully online and screaming, but the “let’s put this into calm sentences” part is still napping in the corner.
I catch myself doing classic toddler things without meaning to: crossing my arms tight, huffing, pacing in little circles, or just staring at the floor because saying “I’m upset” feels impossible. Sometimes the only thing that escapes is a shaky “I don’t know” or “It’s too much.” And that’s okay. It really is. Just like a toddler isn’t “bad” for melting down—they’re just overloaded—I’m not “bad”, my brain is failing at processing when the feelings get too big. It’s still wiring itself back together.
Stacking Blocks
Why My Brain Injury Recovery Feels Like Being a Toddler Again
If you’ve ever peeked into the world of brain injury recovery, you know it’s a wild, unpredictable ride. I’m still in the middle of mine, and lately I’ve realized something that makes me smile (and sometimes tear up): it feels exactly like being a toddler all over again. Not in a cute, “aww, look at the baby steps” way—though there are plenty of those in recovery sure—but in the raw, confusing, “what just happened?” kind of way. Let me walk you through it, because if you’re recovering too, or love someone who is, maybe this little comparison will help you feel a little less alone… and a little more hopeful.
The Sudden “Where Am I?” Moments
You know how toddlers sometimes wake up from a nap and have no idea how they got there? Raising five kids, I’ve seen this often in their toddler years. One minute they’re in the car, the next they’re in their crib at home, blinking in total bewilderment. They wake up from their nap and confusion is on their face as they look around at the bustle around them in this new room that is different than the quiet carseat they fell asleep in. That’s my life now with memory gaps.
I’m Not Normal
Three years. That’s how long it’s been since I felt like the version of myself that other people used to know.
A traumatic brain injury didn’t just knock me out physically—it rewired how I think, how I speak, how I show up in relationships, and even how I see myself. For a long time I described it the only way that felt honest: I have a broken brain. Some days I still feel like a toddler trapped in an adult body—full of big emotions, zero filter, and the constant fear that I’m never going to be “normal” enough for the people I love.
But here’s what I’ve learned in three years of messy, imperfect recovery: “normal” was never the goal. The goal was honest. The goal was trying. And the goal was slowly becoming someone I could look in the mirror and say, “You’re doing your best, and that’s enough today.” The goal wasn’t to be loved, but to love.
The TBI Lesson in “I am Legend”
The last blog talked about my experience feeling like being perceived as a Zombie.
It reminded me of another Zombie story in my life. A couple of years before I got hurt, we had a time where we had my youngest sister over to our house. We were browsing for a movie to watch with her and came across “I am Legend”. I hadn’t seen it since it had come out in 2007 but remembered it was a good action movie, captivating, and I had enjoyed it back then. But I couldn’t recall much more about it. Well, as we got into it, it was clearly a “Zombie” movie. Not like a regular Zombie movie, but still not necessarily the right movie to pick for her. We should have done a Rom-Com or something for my wife and her more I guess retrospectively. But unlike a stereotypical “Zombie” movie - this one is different, and I would now argue actually eerily similar to my TBI journey in some ways.
Lessons from 'I Am Legend' on Misunderstanding TBI Patients
In the eerie silence of a post-apocalyptic world, Will Smith's character in I Am Legend wanders the empty streets of New York City, haunted by creatures that were once human but now seem monstrous. These "Darkseekers," as they're called in the film, are victims of a virus that has stripped them of their humanity, trapping them in a state of rage and isolation. But what if I told you this sci-fi thriller can at times hold a mirror to the real-life experiences of those living with with a brain injury? Just like the “infected” Darkseekers in the movie, TBI patients often feel trapped by their symptoms, misunderstood by society, and desperately in need of a "cure" – or at least better understanding and support. In this blog post, I'll explore the movie's themes and draw some parallels to the often-invisible struggles of TBI survivors.
Why am I a Zombie?
I don’t remember much of the first couple of years from my injury. But I’m forever grateful that prior to my injury I had learned the skill of journaling from a leadership course I had attended for my job. This skillset would prove to be one among many TBI recovery skills that are often taught post-injury to Brain Injured patients that I had been blessed to develop ahead of time. These skills somehow miraculously assisted in being able to regain entry into my job after the initial months of recovery off even though barely functioning internally. I don’t have as many journal entries as I retrospectively wish I would have had from the first year, but from what I can gather as I reread these early ones, the bulk of my initial days were literally sleeping so not much to record anyway. 18+ hours on most days. Falling asleep in the middle of loud activity all around. My time awake was spent staring out the window, at nothing truly. Unable to focus. Every light too much. Each sound so painful. These spots in my vision distracting, draining, confusing. Unable to do much and with little company there often was not much to journal about beyond my kids and wife in the pieces I could gather and understand, but I also thought I “just” had a concussion and was just resting and getting better and then eventually “just” Post Concussive Syndrome and just need to keep resting and I’ll be better. I never knew what this was and would end up being.
Early on I could not watch anything. The TV made me sick physically. Each scene cut transition every 3 seconds was too quick to process, too overstimulating for me. In the first days, I recorded that my wife and I went to watch a movie and I had it turned off within five minutes unable to process even the sound with my eyes shut. Everything was too much. It hurt, made me nauseous, and was overwhelming in a way that is so difficult to describe.
Navigating Time After My Injury
Have you ever felt like time was slipping away, or that minutes stretched into hours during a mundane task? For most people, these are fleeting experiences. I remember when that used to be the case. But for those recovering from a traumatic brain injury (TBI), such distortions in time perception can become a daily reality, intertwined with memory challenges that make even simple routines feel overwhelming.
Today is Daylight Savings Time where we artificially adjust time. An “hour” of time just elapsed in less than a second. While not the same as these experiences of time within brain injury recovery, the reality experienced is often quite similar. How is it now an hour later without feeling like any time has passed and no idea how I got here in this new room or what I am doing? Weren’t we just eating? Imagine Daylight Savings Time adjustments occurring all of the time and unpredictably without warning. For caregivers repeating the same conversation with the patient, like the “Fall Back” hour, wasn’t it already this time of day??! This conversation again?!
For me, pondering the difficulties experienced from this phenomenon leads to the question of why this is happening? Why can’t I just experience time like normal again?
Whose Lens Are You Looking Through?
I recently attended a life-changing educational opportunity with thirteen other incredible professionals. After six months of coursework together, we met for a two-week capstone course on leadership.
On the first day together, we encountered an activity as a group together surrounding the importance of checking our perspectives, our lenses, that we are looking through. Depending on the color of lenses, different numbers on a page of paper were visible to different people. The reality didn’t change, but only with the correct lens color could all of the numbers be seen.
Circling the Drain
As a child I loved to play with the Coin Vortex Funnel donation stations that would often be found at a museum or zoo that our family would visit. For a penny, I could have minutes of entertainment. Watching the penny shoot down the shoot into a seemingly endless spiral. Around and around the coin would go. Often it would seem the coin was circling the same exact spots. Higher, lower. Around and around. From above, watching the coin circle, I would see the path. I could see what was coming up next.